Requesting Specific Datasets

Requests for data or analyses from the National Registry of Childhood Tumours which are not covered by analyses published by the Childhood Cancer Research Group should be made to the Director of the Registry.

The CCRG is a member of the UK Association of Cancer Registries (UKACR) and will follow the procedures adopted by that group when releasing data. In addition the CCRG will adhere to any specific undertakings made to individual cancer registries or to the Office for National Statistics or the Information and Statistics Division, Scotland. The CCRG is also a member of the Children's Cancer and Leukaemia Group (CCLG) and will follow the procedures of that group. Much of the registration data held by the CCRG is provided by CCLG members. The rights of that group and their interest in the data will be taken into account in all uses of, and releases of, the NRCT data.