Uses of the National Registry of Childhood Tumours

The data from National Registry of Childhood Tumours (NRCT) are used to monitor childhood cancer incidence survival and mortality rates. They form the basis for much of the research at the Childhood Cancer Research Group. A description of the current research programme is given under the 'Research' menu.

The Registry also provides series of cases for studies by other research workers. Unpublished statistical information is supplied to a wide range of clinicians, scientists, government, the media and members of the public.

Data on incidence, survival and mortality were included in the Cancer Research UK Cancer Stats Monograph 2004 and updated in 2010. A summary of this information is available on the CRUK website. Similar information was included in the childhood cancer chapter of the National Statistics publication "The Health of Children and Young People". Both of these publications also include discussion of what is known about the causes of cancer in childhood. In 2007, the book "Childhood Cancer in Britain: incidence, survival and mortality" was published, authored by members of the CCRG. It provides a comprehensive account of work based on the NRCT. (Stiller C. Childhood cancer in Britain: incidence, survival, mortality. Oxford: Oxford University Press; 2007)

The National Registry of Childhood Tunours is covered by the approval granted to the UK Association of Cancer Registries by the National Information Governance Board (NIGB). Cancer registries have legal support to collect data relating to cancer under Section 251 of the NHS Act 2006 (and formerly under Section 60 of the Health and Social Care Act 2001).